Rights to research data
Research Ethics Principles
Research related to SDCGs meets the current conventions, legislation and principles that are relevant to research conducted in the country and in the country's population. This includes, for example, the Helsinki Declaration II of the UN Convention on the Rights of Indigenous Peoples (UNDRIP). For the entire research effort under the auspices of the SDCG, there is freedom of research and publication.
Permit for a research project
The project must be approved by the Committee on Health Research Ethics for Greenland.
Guidance and application form can be found in Danish and Greenlandic at www.nun.gl.
- Applicant must have approval from area or regional management.
If the project is intended to be carried out in the healthcare institutions and/or concerns patients, the applicant must obtain approval from the relevant area or regional management, which must agree to the total resource draw on the healthcare system as well as the feasibility of the project during the planned period, including where the project will take place, time period and any need for personnel assistance.
- Applicants must obtain final authorisation from the Health Management Board
All research projects that take place in the health institutions, in collaboration with staff from the health system and/or deal with patients, must be approved by the Health Management Board. Upon given permission from points 1 and 2, the following material must be submitted to the Greenland Health Service (Sundhedsledelsen@peqqik.gl) for final permission:
- - Approval from the Scientific Ethics Committee
- Acceptance from the responsible area or regional management (in the case of no resource move, this is not necessary)
- nvolves reviewing records, as this is only permitted for employees in the Greenlandic Healthcare Service. However, the vast majority of information and data can be extracted from the electronic medical record (EMR) with the help of the Healthcare IT department.